The Assertive Patient
Have you (or someone you care about) had a poor health care experience? Are you wondering who to talk to and what to say? If so, this guide is for you. Health Care For All's Consumer Health Quality Council aims to promote patient safety and quality of health care. Part of this work involves sharing information on what to do when things don’t go as expected in the hospital, despite the good intentions of both patients and health care providers. Members of the Council created this guide to help people successfully navigate the customer service channels at different hospitals. This guide features information about the contacts and policies at each hospital, as well as general advice about addressing health care quality problems whenever—and wherever—they arise.
Center for Disease Control and Prevention (CDC)
An agency of the Department of Health and Human Services, dedicated to promoting "health and quality of life by preventing and controlling disease, injury, and disability." Consumers will find resources about diseases, conditions, and other topics arranged under "Health Topics A-Z".
Centers for Medicare and Medicaid Services (CMS)
Federal agency responsible for administering the Medicare , Medicaid, SCHIP (State Children's Health Insurance), HIPAA (Health Insurance Portability and Accountability Act), CLIA (Clinical Laboratory Improvement Amendments), and several other health-related programs.
Consumers Advancing Patient Safety (CAPS)
Consumer led patient-centered resource dedicated to improving safety by promoting partnerships between patients and health care providers.
Health Care For All and our Consumer Health Quality Council
Health Care For All and our Consumer Health Quality Council successfully advocated for the first-ever Patient and Family Advisory Council law, which requires all Massachusetts hospitals to establish these groups of patients and family members to work with the hospital on improving care and the care experience. In 2013, Health Care For All brought together representatives of the PFACs at the first annual statewide PFAC conference to share best practices, learn from one another, and start developing a statewide network.
Hospital Compare, United States Department of Health and Human Services (HHS)
This tool provides information on how well the hospitals in your area care for all their adult patients with certain medical conditions.
Institute for Family Centered Care
The Institute for Family-Centered Care advances the understanding and practice of patient- and family-centered care. In partnership with patients, families, and health care professionals, the Institute seeks to integrate these concepts into all aspects of health care. The Institute accomplishes its mission through education, consultation, and technical assistance; materials development and information dissemination; research; and strategic partnerships.
Medically Induced Trauma Support Services (MITSS)
Provides assistance to patients, families and medical personnel who have been affected by medically induced trauma.
MEDWATCH - U.S. Food & Drug Administration's Safety Information and Adverse Event Reporting Program
Provides safety information about drugs and other medical products regulated by the U.S. Food and Drug Administration. Supplies links for reporting adverse events for both consumers and health care professionals.
Phone: 1-888-INFO-FDA (1-888-463-6332)
National Committee for Quality Assurance (NCQA)
Provides information related to the quality of the nation's managed care plans. Information from this site will help you decide which health plan you want to cover you, your family, or your employees.
National Council on Patient Information and Education (NCPIE)
Committed to safe medication use by promoting better communication. Provides general information regarding prescription, over the counter medications and herbal supplements.
Put It In Writing.org
American Hospital Association resource which provides basic facts about advance directives and encourages patients to explore their choices for end of life care. An advance directive is a legal document that helps ensure that your health care preferences will be followed if you are sick and unable to communicate.
Society for Healthcare Consumer Advocacy
Supports the role of professionals who represent and advocate for consumers. Serves a resource for consumers on issues such as patients' rights, and education.
The National Patient Safety Foundation (NPSF)
Dedicated to improving patient safety and reducing medical errors by funding research and raising awareness with hospitals, health care systems, doctors, nurses, and their patients.
The Leapfrog Group
Comprised of private and public purchasers of health care benefits. Hospitals voluntarily submit information related to quality and patient safety efforts. This information is available to consumers to assist in making informed decisions about where to receive hospital care.
U. S. Pharmacopeia
Sets the standards for all prescription, over the counter, and dietary supplements manufactured and sold in the United States. Maintains medication error reporting systems for submissions by hospitals, health systems and individual providers.