Being a parent is a joyful, rewarding experience. At times, it can also be the most difficult and stressful job there is. You probably have a lot to do every day to meet your child's needs.

When your child has special health care needs, your daily 'to do' list is even longer. In addition to taking care of laundry, meals, and giving homework help, you might also need to:

  • Call your child's primary care provider (PCP) for a referral to a specialist
  • Pick up medications at the pharmacy
  • Give your child medications
  • Take your child to medical appointments
  • Call the insurance company to get pre-approval for a hospital admission
  • Schedule an assessment with Early Intervention
  • Meet with the school nurse to review your child's health plan
  • Get your child's medical equipment fixed

Life is even more complex if you have other children.

Taking care of yourself is very important. When you are busy taking care of everyone else's needs, it is easy to forget to take care of yourself. This chapter provides information for you about:

  • Taking care of yourself
  • Emotional Support
  • Getting connected with other families
  • Tips on advocating for your child and family

This information is not meant to make your 'to do' list longer. It's meant to help support you in caring for yourself and your child. Look over the suggestions in this chapter. Pick one or two activities that sound appealing. Once you've tried one, it may be easier to try others.