• Talk to your child about his or her condition or disability in words your child can understand. Help your child find a good way to explain it to others.

  • Teach your child to know when he or she is having an emergency — and to tell you and others.

  • Teach your child the names of the medicine(s) he or she takes.

  • Talk to your child about how to stay healthy (for example: getting enough rest and eating well).

  • Encourage your child to talk directly to health care providers - and to ask questions.

  • Encourage your child's health care providers to talk directly to your child.