- American Academy of Family Physicians
Overview and information, fact sheets for families.
- Centers for Disease Control & Prevention (CDC)
Facts about Down syndrome, what we know and don't know. Links to multiple resources, organization and research.
- March of Dimes
Promoting good birth outcomes and sharing best practices in perinatal health. Provides overview, definitions, information about co-morbid conditions, bibliography for clinicians and resources for families
- Mayo Clinic - Rochester, MN
Overview and information about the condition, symptoms and causes, complications, treatment options and links. Provides a graphic of the genetic basis of Down syndrome
- Medline Plus National Institutes of Health on-line Library
Definitions, current research and clinical trials, tutorials, links to multiple organizations. Information available in Spanish and English
- Prenatal Diagnosis of Down Syndrome: A Systemic Review of Termination Rates (1995-2011)
Jamie L Natoli, et.al, Prenatal Diagnosis, Volume 32, 142-153, February 2012
A meta-analysis of studies looking at termination rates among women receiving a prenatal diagnosis of Down syndrome. PDF. Available at Wiley On-Line Library
Requires an account and login.
- Pub Med US National Library of Medicine
Repository of articles on Down syndrome generally, screening and health care provider practice
- Understanding a Down Syndrome Diagnosis
Booklet compiled by the Down Syndrome Consensus Group with input from the National Society of Genetic Counselors, the American College of Medical Genetics and Genomics, the American College of Obstetricians and Gynecologists, the National Down Syndrome Society, and the National Down Syndrome Congress. This booklet is available for download www.lettercase.org.
This information is provided by the Department of Public Health .