Research shows the majority of young adults generally do not receive recommended transition supports, including: early and ongoing assessments of self-care skills; engagement and support for developing self-care skills preparation for adult-centered care, including changes in privacy and consent; assistance with identifying adult providers; an organized process for transfer to adult providers; and opportunities to provide feedback.

Health care providers are key to successful transitions from the pediatric to the adult medical home and depending on the needs of the young person; there may also be one or more specialty care providers who may need to be involved early on in the process. Ideally, each new adult provider will be knowledgeable about the young person’s health condition or disability and its treatment, and will be someone with whom the young person feels comfortable.

When there is a clear pediatric practice transition policy; medical self-management skills are supported early on by the pediatric provider, specialists, parents and the youth; and a clear, coordinated transition plan is developed by all, including potential adult providers, transition is most successful.

The links above are only some of the sites that can provide you as either a pediatric or adult provider with tools and support to coordinate a successful transition, research, and CME opportunities for understanding and working with young adults with special healthcare needs.

This information is provided by the Division for Children & Youth with Special Health Needs within the Department of Public Health.