Tips for Parents and Caregivers
The tip sheets below are the parent component to the youth and young adult tip sheets. Each tip sheet offers suggestions and strategies for you to increase your child’s understanding of their complex medical needs and to increase their self-management skills over time. The age ranges given for each tip sheet serve only as guidelines and may vary dependent on your child’s cognitive abilities.
- First Steps for Talking to Your Child about His Health 4 - 6
- First Steps for Talking to Your Child about Her Health 7 - 10
- Preparing Your Child to Take Care of His Health 11 - 13
- Guiding Youth to take Charge of their Health 14 - 17
- Transitioning Young Adult from Pediatric to Adult Healthcare 18 – 20
- The Ins & Outs of Transition Planning
The Down Syndrome Adolescent & Young Adult Clinic serves patients from 13 to 21 years of age. Families and youth receive support and education about transition planning in order to prepare youth to be engaged in all aspects of their care and can serve as consults to other practices.
This 8 minute video of a mom & her young adult daughter discusses from each of their viewpoints, their fears & needs regarding the development of self-management skills.
- Moving from Pediatric to Adult Providers
This 16 minute video models a series of steps and strategies pediatricians, parents and the youth can take to ensure a successful transition to adult care. The steps include strategic discussions, understanding the process and ways to support the young adult through the process beginning at age 14.
- Individualized Health Plans
This video explains the importance of ensuring a health plan for youth and young adults with significant health needs is incorporated into the IEP. By incorporating self-management skills into the IEP transition to post-secondary or vocational settings will be more successful.
This information is provided by the Division for Children & Youth with Special Health Needs within the Department of Public Health.