Posted at 8:49 AM, February 25, 2015

Meets Annually


Thursday, March 5, 2015 - 5:00 PM – 6:30 PM


Public Health Council Room, 2nd floor
The Department of Public Health
250 Washington Street
Boston MA 02108


  1. Welcome, Introductions and Announcements: Karen McAlmon, M.D., Chair Massachusetts Newborn Screening Advisory Committee
  2. Review and Approval of the October 22, 2014 Meeting Minutes
  3. Adrenoleukodystrophy (ALD)
    • Final Discussion
    • Vote
  4. Pompe Disease
    • Final Discussion
    • Vote
  5. Spinal Muscular Atrophy (SMA): Introduction
  6. Participation on the Newborn Screening Advisory Committee
  7. Next Meeting Topics

Please note the Department of Public Health implemented a new building access program. You will be asked to show identification before entering the building. Please inform the security guard that you are attending the Newborn Screening Advisory Committee Meeting.

Contact Information

Janet Farrell, Director
Bureau of Family Health and Nutrition
250 Washington Street
Boston, MA 02108
phone: 1-800-882-1435 or 617-624-5959
fax: 617-994-9822
TTY: 617-624-5992

This information is provided by the Division for Children & Youth with Special Health Needs within the Department of Public Health.