Commonwealth of Massachusetts
A Proclamation
His Excellency Governor Deval L. Patrick

Whereas Fabry disease is a rare and life-threatening genetic disorder that causes children and adults to suffer a cascade of symptoms such as pain, decreased ability to perspire, intolerance to heat and exercise, unexplained fevers, and gastrointestinal upset that may later cause premature death due to heart attacks, strokes and kidney failure; and

Whereas Fabry disease is caused by deficient activity of the lysosomal enzyme alpha-galactosidase A that causes insufficient breakdown of lipids, which build up to harmful levels in the body causing lysosomal and cellular dysfunction ; and

Whereas In the U.S. 1 in 50,000 males and twice as many females have Fabry disease; and

Whereas An enzyme assay test for males and molecular DNA test for females can confirm Fabry disease, and may help prevent irreversible organ damage caused by late diagnosis; and

Whereas Increased physician and family education is critical to increase awareness of this disease which usually goes under-recognized or misdiagnosed,

Now, Therefore, I, Deval L. Patrick, Governor of the Commonwealth of Massachusetts, do hereby proclaim April 2012,  to be

Fabry Disease Month

And urge all the citizens of the Commonwealth to take cognizance of this event and participate fittingly in its observance.

Given at the Executive Chamber in Boston, this ninth day of March, in the year two thousand and twelve, and of the Independence of the United States of America, the two hundred and thirty-fifth.
               
By His Excellency                  

Deval L. Patrick                   
Governor of the Commonwealth         

William Francis Galvin             
Secretary of the Commonwealth  
 

God Save the Commonwealth of Massachusetts