Consumer Advisory Group

January Meeting

January 29, 2014
Agenda

Project Update
Current Approach for Review and Reaction
Next Steps

Mass HIway Phase 1 Update
Mass HIway Phase 2 Update
Agenda

Project Update
Current Approach for Review and Reaction
Next Steps

Setting the table for today’s discussion
•	Review of Phase 2 launch event

•	Update on communications approach underway at EOHHS

•	Discussion of Mass HIway Phase 2 Patient Privacy Protections 

•	Drilldown on “Break the Privacy Seal” functionality for RLS

HIway Phase 2 Go-live Event
 	Jan 8th event to announce launch of Mass HIway phase 2 services
 	Event began with speeches from Secretary Polanowicz, and Governor Patrick followed by live demonstration of Mass HIway technology
 	BIDMC emergency team conducted a mock Emergency Department  visit where the emergency team used the HIway Relationship Listing Service (RLS) to discover the patient had medical records at Atrius, Tufts, and Holyoke
 	The emergency team made a medical record request to each of the other record holders and discovered critical information for patient’s diagnosis and treatment including drug allergy, iodine allergy, recent CT scan.
 	Narration and a guided panel debrief by John Halamka pointed out avoided adverse events, improved speed and accuracy of diagnosis, avoided unnecessary tests, and cost savings.
 	Event was well covered by press – please contact Amy Caron (amy.caron@state.ma.us) for clip list
Update on EOHHS Communications
EOHHS team is finishing up print and web content for patients – MassHealth resources are engaged to edit content, ensure it is readable at a 6th grade reading level, and translated

MassHealth will ensure that the information gets out to all MassHealth participants – They will engage partners (e.g, Hospitals, Community Health Centers) to provide enrollment assistance aging access points

EOHHS working with Massachusetts Medical Society to develop provider education campaign 

EOHHS strategy is to support provider / patient conversations first before moving to broader communications campaign – this is to include working with partner organizations per this Advisory Group’s recommendation

EOHHS is piloting the communication of the consent approach with phase 2 early adopters in the coming weeks
Discussion of Mass HIway Phase 2 Privacy Protections
(1 of 2) 
 	Consent based: Only individuals that have given their consent will be listed on the Relationship Listing Service. Providers must also gather an individual’s consent to use the HIway to request the individual’s medical records from another provider.

 	Limited Patient Data: Mass HIway holds no patient data without consent. When an individual provides consent, only demographic information is held.

 	Closed community: Only permitted Participants that have signed a Participation Agreement with the Mass HIway, and that have an established relationship with a patient, may view the patient’s relationships on the Relationship Listing Service.

 	Break the Privacy Seal: A Provider that gives emergency care is given the option to view the patient’s relationships on the Relationship Listing Service when he/she does not have a previously established relationship with the patient. When a provider “breaks the privacy seal” he/she must provide a reason and this is audited with date and time. A notification is then sent to the provider’s Access Administrator who is responsible for detecting and correcting misuse. Additionally, Mass HIway runs regular reports to detect and correct for misuse of Break the Privacy Seal use.
Discussion of Mass HIway Phase 2 Privacy Protections
(2 of 2)
 	Audit Logging: Mass HIway logs activity for audit including RLS updates, RLS views, Medical Record Requests, and “Break the Privacy Seal” instances. Patients may request audit logs through their healthcare provider.

 	Data Encrypted in Transit: Mass HIway encrypts all data that is sent from one participant to another. This prevents interception while in transit.
RLS “Break the Privacy Seal” – Screenshot 1 of 3
RLS “Break the Privacy Seal” – Screenshot 2 of 3
RLS “Break the Privacy Seal” – Screenshot 3 of 3
RLS – Break the Privacy Seal function
Agenda

Project Update
Current Approach for Review and Reaction
Next Steps

Next steps
 	Next steps
•	Reactions to be taken into account by HIway design team
•	Meeting notes synthesized and provided back to Advisory Group for final comments
•	Presentation materials and notes to be posted to EOHHS website
•	Next Advisory Group Meeting – February 26, 2014
-	Mass Medical Society – Middlesex Central conference room
-	Conference call (866) 951-1151 x. 8234356
•	HIT Council – scheduled for February 3, 3:30-5:00 One Ashburton Place, 21st Floor

 	HIT Council meeting schedule, presentations, and minutes may be found at http://www.mass.gov/eohhs/gov/commissions-and-initiatives/masshiway/hit-council-meetings.html