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Newborn Screening Advisory Committee Meeting

Tuesday, May 15, 2018
3 p.m. - 6 p.m.

Address

University of Massachusetts Medical School, 377 Plantation Street, Biotech 4, Floor 2, Worcester, MA 01605

Overview of Newborn Screening Advisory Committee Meeting

Newborn Screening Advisory Committee Meeting

Agenda

Newborn Screening Advisory Committee Meeting Agenda

Massachusetts Department of Public Health 

Newborn Screening Advisory Committee Meeting

 Date:               Tuesday May 15, 2018 

Time:               Facility Tour 3:00-4:00 PM, Advisory Committee Meeting 4:00-6:00 PM 

Location:        University of Massachusetts Medical School, 377 Plantation Street, Biotech 4, Floor 2, Worcester, MA 01605-2300   (Please drive up to the main entrance to receive a parking pass. There is a large parking lot near the building.)  

Agenda

The next meeting of the Newborn Screening Advisory Committee will take place at UMass Medical School in Worcester on May 15th. There will be a tour of the new facility for the Newborn Screening Program followed by the advisory committee meeting. The tour will begin at 3:00 PM and the meeting will begin at 4:00 PM.

  1. Welcome Gathering for Tour of the New Facilities for Newborn Screening at UMass Medical School Worcester Campus.
  2. Official Meeting Welcome, Introductions and Membership/Meeting Rules: Karen McAlmon, Committee Chair and James Ballin, legal counsel
  3. Meeting Business:
    • Review and Vote on Prior Meeting Minutes from December 11, 2015
    • Newborn Screening Program Updates
      1. Transition to Worcester location
    • Update on Implementation of Pilot of New Disorders Added
      1. Consent – The rates of consent and the implications
      2. Updated Parent Brochures
      3. Preliminary data about pilot test findings
    • New Tests on the Horizon
      1. Local Considerations
    • Implications of Current Common Rule – How it affects what we can and cannot do
  • Next Steps
  • Adjournment

Contact Information: 

Jacqueline Dooley, Program Coordinator
Bureau of Infectious Disease and Laboratory Sciences Administration
305 South StreetJamaica Plain, MA  02130
Phone: (617) 983-6550
Fax: (617) 983-6925
email:
jacqueline.dooley@state.ma.us

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