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Organizations that support families with children with Down syndrome

Massachusetts and national Down syndrome organizations

More about: Understanding a Down syndrome diagnosis

Massachusetts Down Syndrome Congress
Statewide organization staffed by families working to enhance the lives of individuals with Down syndrome and their families, offering resources and information for new and expectant parents, health professionals, families and children. Site of the Parents' First Call Program, which makes connections for parents with a new diagnosis of Down syndrome with others who have had the same life experience. To speak to with a First Call parent: call 800-664-MDSC (6372), e-mail scullen@mdsc.org.

National Down Syndrome Congress
Resources and educational materials for new and expectant parents.

National Down Syndrome Society
Definitions, guides, informational brochures and fact sheets available in English and Spanish.

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