ALS Registry

The Argeo Paul Cellucci Amyotrophic Lateral Sclerosis (ALS) Registry of Massachusetts. ALS is also known as Lou Gehrig’s disease.

The Argeo Paul Cellucci ALS Registry of Massachusetts is the direct result of requests by ALS patients, families, and patient advocacy groups. This lead to a legislative mandate that establishes a statewide surveillance system for ALS (M.G.L. c. 111, § 25A). The directive states that “the Department of Public Health may establish an ALS registry, by areas and regions in the Commonwealth, with specific data to be obtained from urban, low and median income communities, and minority communities of the Commonwealth.” The Registry was created in 2007 following planning, focus groups, and pilot evaluations. In 2013, the MA Senate re-named the registry for the late former Massachusetts governor Argeo Paul Cellucci, who was diagnosed with ALS in 2011.
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