Directions was created for you, a parent of a child with special health needs. It can help you plan and coordinate care for your child. In Directions you will find:
- Ways to organize your child's health information
- Information about caring for your child's special needs
- Tips from other parents of children with special health care needs
Directions has many forms to fill out and a lot of information to read through. Take your time to fill out the forms that are useful to you, gather your child's records, and read through the chapters. You may want to use different forms and sections at different points in your child's life. This notebook can be very helpful to you and your child's health care providers.
Tip: Bring your Directions binder to your child's appointments and meetings with health care providers.
How to use Directions and table of contents
Download the Title page, table of contents, and more organizing tips PDF (Doc).
- Download and print out the chapters and forms you may need. Put them together in a 3-ring binder.
- Keep your child's Massachusetts Lifetime Health and Immunization Record together with your Directions 3-ring binder. Take it with you every time you go to a health care visit, whether it is a check-up or an emergency visit.
- Use the Calendar PDF (Doc) to write down important dates and appointments.
Chapter 1: Important information about your child
Chapter 2: Health Records
Chapter 3: School records
- Check the Glossary for the meaning of some words and terms.
- Check the Family TIES Resource Directory It has the names, addresses, phone numbers, and web addresses for many useful organizations and programs.
- Ask for help. There are many people that can help you organize this notebook, such as your child's primary care provider, nurse, care coordinator, case manager, teacher, other parents, or other family members.
Chapter 4: Being Prepared for an Emergency
Chapter 5: Your Child's Medical Team
Making the Most of a Health Visit: How to prepare for an office visit
Preparing for the Hospital Discharge: Your child should leave the hospital with a written discharge plan prepared by hospital staff. The discharge plan will help to make sure that your child has the right support to stay healthy when it's time to leave the hospital.
Chapter 6: Your Child's Everyday Care
Use Chapter 6 PDF (Doc) for information and resources for taking care of the daily needs of your child, including information about some health care services used at home that may need extra planning. Many of the following ideas and tips come from other parents based on their own experiences.