Rare Disease Advisory Council Meeting Schedule 2025

All meetings are by Zoom.

Table of Contents

Full Council Meetings

The Full Council meetings are on the third or fourth Thursday of every other month.

Date of MeetingTime of Meeting
January 23, 20259:00 am – 11:00 am
March 27, 20259:00 am – 11:00 am
May 22, 20259:00 am – 11:00 am
July 24, 20259:00 am – 11:00 am
September 25, 20259:00 am – 11:00 am
November 20, 20259:00 am – 11:00 am

Steering Committee Meetings

The Steering Committee meetings are on the third or fourth Thursday of every other month.

Date of MeetingTime of Meeting
February 27, 202510:30 am – 11:30 am  
April 17, 202510:30 am – 11:30 am
June 26, 202510:30 am – 11:30 am
August 28, 202510:30 am – 11:30 am
October 23, 202510:30 am – 11:30 am
December 18, 202510:30 am – 11:30 am

Policy Subcommittee Meetings

The Policy Subcommittee meets quarterly on the second Wednesday of the month.

Date of MeetingTime of Meeting
January 8, 202510:00 am – 11:00 am  
April 9, 202510:00 am – 11:00 am
July 9, 202510:00 am – 11:00 am
October 8, 202510:00 am – 11:00 am

Research Subcommittee Meetings

Date of MeetingTime of Meeting
March 19, 20259:30 am – 10:30 am
June 18, 20259:30 am – 10:30 am
September 17, 20259:30 am – 10:30 am
December 17, 20259:30 am – 10:30 am

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