Rare Disease Advisory Council Meeting Schedule 2026

All meetings are by Zoom.

Full Council Meetings

The Full Council meetings are on the third or fourth Thursday of every other month from 9:00 am to 11:00 am.

Date of MeetingTime of Meeting
January 22, 20269:00 am – 11:00 am
March 26, 20269:00 am – 11:00 am
May 21, 20269:00 am – 11:00 am
July 23, 20269:00 am – 11:00 am
September 17, 20269:00 am – 11:00 am
November 19, 20269:00 am – 11:00 am

Steering Committee Meetings

Steering Committee meetings are on the third or fourth Thursday of every other month from 10:30 to 11:30 am.

Date of MeetingTime of Meeting
February 26, 202610:30 am – 11:30 am  
April 23, 202610:30 am – 11:30 am
June 18, 202610:30 am – 11:30 am
August 27, 202610:30 am – 11:30 am
October 22, 202610:30 am – 11:30 am
December 17, 202610:30 am – 11:30 am

Policy Subcommittee Meetings

Policy Subcommittee meets quarterly on the second Wednesday of the month from 10:00 am to 11:00 am.

Date of MeetingTime of Meeting
January 14, 202610:00 am – 11:00 am  
April 8, 202610:00 am – 11:00 am
July 8, 202610:00 am – 11:00 am
October 14, 202610:00 am – 11:00 am

Research Subcommittee Meetings

Research Subcommittee meets every other month on the third Wednesday from 9:30 am to 10:30 am.

Date of MeetingTime of Meeting
February 18, 20269:30 am – 10:30 am
April 15, 20269:30 am – 10:30 am
June 17, 20269:30 am – 10:30 am
August 19, 20269:30 am – 10:30 am
October 21, 20269:30 am – 10:30 am
December 16, 20269:30 am – 10:30 am

Healthcare Transitions (Pediatric to Adult Care) Subcommittee Meetings

The Healthcare Transitions Subcommittee meets on the third Tuesday of each month from 12 noon to 1:00 pm. 

Date of MeetingTime of Meeting
January 20, 202612:00 pm – 1:00 pm
No meeting in February 
March 17, 202612:00 pm – 1:00 pm
April 21, 202612:00 pm – 1:00 pm
May 19, 202612:00 pm – 1:00 pm
June 16, 202612:00 pm – 1:00 pm
July 21, 202612:00 pm – 1:00 pm
August 18, 202612:00 pm – 1:00 pm
September 15, 202612:00 pm – 1:00 pm
October 20, 202612:00 pm – 1:00 pm
November 17, 202612:00 pm – 1:00 pm
December 15, 202612:00 pm – 1:00 pm

Community Engagement Subcommittee Meetings

 TBD

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