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Rare Disease Advisory Council (RDAC) meeting agendas and minutes

You can find current and archived meeting information, agendas, and minutes on this page. The approved minutes will be posted when they become available.

Note: Rare Disease Advisory Council Meeting Schedule 2026

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2025

June 18, 2025 - Research Committee Meeting
May 22, 2025 - RDAC Full Council Meeting
April 17, 2025 - Steering Committee Meeting
April 9, 2025 - Policy Subcommittee Meeting
March 27, 2025 - Full Council Meeting
March 19, 2025 - Research Committee Meeting
February 27, 2025 - Steering Committee Meeting
January 23, 2025 - Full Council Meeting

2024

December 19, 2024 - Steering Committee Meeting
December 16, 2024 -- RDAC Legislative Initiatives Meeting (Canceled)
November 21, 2024 - Full Council Meeting
October 17, 2024 - Steering Committee Meeting
September 18, 2024 - Newborn Screening Ad Hoc meeting
September 19, 2024 - Full Council Meeting
August 15, 2024 - RDAC Steering Committee Meeting
Cancelled- August 19, 2024 - RDAC Legislative Initiatives Meeting
August 9, 2024 - Newborn Screening Ad Hoc meeting
July 18, 2024 - Full Council Meeting
July 15, 2024 - Legislative Initiatives Subcommittee Meeting
June 20, 2024 - RDAC Steering Committee Meeting
June 3, 2024 - RDAC Legislative Initiatives Subcommittee Meeting
May 20, 2024 - Legislative Initiatives Subcommittee Meeting Agenda
May 15, 2024 - Community Engagement Workgroup Subcommittee Meeting
May 6, 2024 - Legislative Initiatives Subcommittee Meeting
May 6, 2024 - Community Engagement Workgroup Subcommittee Meeting
April 22, 2024 - Legislative Initiatives Subcommittee Meeting
April 11, 2024 - Steering Committee Meeting
March 28, 2024 - Rare Disease Advisory Council Meeting
Canceled: February 19, 2024 - Steering Committee Meeting
February 5, 2024 - Community Engagement Workgroup Subcommittee Meeting
January 18, 2024 - Rare Disease Advisory Council Meeting

2023

December 19, 2023 - Steering Committee Meeting
December 1, 2023 - Workgroup 2 & 3 Joint Subcommittee Meeting
October 28, 2023 - Virtual Town Hall Meeting Special Report
October 28, 2023 - Virtual Town Hall Meeting
October 19, 2023 - Rare Disease Advisory Council Steering Committee Meeting
September 21, 2023 - Rare Disease Advisory Council Steering Committee Meeting
August 17, 2023 - Rare Disease Advisory Council Steering Committee Meeting
August 7, 2023 - Workgroup 2 & 3 Joint Subcommittee Meeting
August 7, 2023 - Workgroup 1 Subcommittee Meeting
July 20, 2023 - Rare Disease Advisory Council Meeting
June 14, 2023 - Workgroup 2 Subcommittee Meeting
June 8, 2023 - Rare Disease Advisory Council Steering Committee Meeting
June 5, 2023 - Workgroup 1 Subcommittee Meeting
June 5, 2023 - Workgroup 3 Subcommittee Meeting
May 18, 2023 - Rare Disease Advisory Council Meeting
April 27, 2023 - Rare Disease Advisory Council Steering Committee Meeting
April 12, 2023 - Workgroup 2 Subcommittee Meeting
April 3, 2023 - Workgroup 1 Subcommittee Meeting
April 3, 2023 - Workgroup 3 Subcommittee Meeting
March 16, 2023 - Rare Disease Advisory Council Meeting
February 16, 2023 - Rare Disease Advisory Council Meeting
February 13, 2023 - Workgroup 3 Subcommittee Meeting
February 8, 2023 - Workgroup 1 Subcommittee Meeting
February 8, 2023 - Workgroup 2 Subcommittee Meeting
January 19, 2023 - Rare Disease Advisory Council Meeting

2021 - 2022

For archived meeting minutes and agendas, please visit Archived Meeting Agendas & Minutes.

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