Skip to main content

Rare Disease Advisory Council (RDAC) meeting agendas and minutes

You can find current and archived meeting information, agendas, and minutes on this page. The approved minutes will be posted when they become available.

Note: Rare Disease Advisory Council Meeting Schedule 2025

Skip table of contents

Table of Contents

You skipped the table of contents section.

2025

April 17, 2025 - Steering Committee Meeting  
April 9, 2025 - Policy Subcommittee Meeting 
March 27, 2025 - Full Council Meeting 
March 19, 2025 - Research Committee Meeting  
February 27, 2025 - Steering Committee Meeting 
January 23, 2025 - Full Council Meeting 

2024

December 19, 2024 - Steering Committee Meeting  
December 16, 2024 -- RDAC Legislative Initiatives Meeting (Canceled) 
November 21, 2024 - Full Council Meeting  
October 17, 2024 - Steering Committee Meeting 
September 18, 2024 - Newborn Screening Ad Hoc meeting 
September 19, 2024 - Full Council Meeting 
August 15, 2024 - RDAC Steering Committee Meeting 
Cancelled- August 19, 2024 - RDAC Legislative Initiatives Meeting  
August 9, 2024 - Newborn Screening Ad Hoc meeting 
July 18, 2024 - Full Council Meeting 
July 15, 2024 - Legislative Initiatives Subcommittee Meeting  
June 20, 2024 - RDAC Steering Committee Meeting 
June 3, 2024 - RDAC Legislative Initiatives Subcommittee Meeting  
May 20, 2024 - Legislative Initiatives Subcommittee Meeting Agenda 
May 15, 2024 - Community Engagement Workgroup Subcommittee Meeting 
May 6, 2024 - Legislative Initiatives Subcommittee Meeting 
May 6, 2024 - Community Engagement Workgroup Subcommittee Meeting 
April 22, 2024 - Legislative Initiatives Subcommittee Meeting 
April 11, 2024 - Steering Committee Meeting 
March 28, 2024 - Rare Disease Advisory Council Meeting 
Canceled: February 19, 2024 - Steering Committee Meeting 
February 5, 2024 - Community Engagement Workgroup Subcommittee Meeting 
January 18, 2024 - Rare Disease Advisory Council Meeting  

2023

December 19, 2023 - Steering Committee Meeting 
December 1, 2023 - Workgroup 2 & 3 Joint Subcommittee Meeting 
October 28, 2023 - Virtual Town Hall Meeting Special Report 
October 28, 2023 - Virtual Town Hall Meeting 
October 19, 2023 - Rare Disease Advisory Council Steering Committee Meeting 
September 21, 2023 - Rare Disease Advisory Council Steering Committee Meeting 
August 17, 2023 - Rare Disease Advisory Council Steering Committee Meeting 
August 7, 2023 - Workgroup 2 & 3 Joint Subcommittee Meeting 
August 7, 2023 - Workgroup 1 Subcommittee Meeting 
July 20, 2023 - Rare Disease Advisory Council Meeting 
June 14, 2023 - Workgroup 2 Subcommittee Meeting 
June 8, 2023 - Rare Disease Advisory Council Steering Committee Meeting 
June 5, 2023 - Workgroup 1 Subcommittee Meeting 
June 5, 2023 - Workgroup 3 Subcommittee Meeting 
May 18, 2023 - Rare Disease Advisory Council Meeting  
April 27, 2023 - Rare Disease Advisory Council Steering Committee Meeting 
April 12, 2023 - Workgroup 2 Subcommittee Meeting 
April 3, 2023 - Workgroup 1 Subcommittee Meeting 
April 3, 2023 - Workgroup 3 Subcommittee Meeting 
March 16, 2023 - Rare Disease Advisory Council Meeting 
February 16, 2023 - Rare Disease Advisory Council Meeting 
February 13, 2023 - Workgroup 3 Subcommittee Meeting 
February 8, 2023 - Workgroup 1 Subcommittee Meeting 
February 8, 2023 - Workgroup 2 Subcommittee Meeting 
January 19, 2023 - Rare Disease Advisory Council Meeting 

2021 - 2022

For archived meeting minutes and agendas, please visit Archived Meeting Agendas & Minutes.

Help Us Improve Mass.gov  with your feedback

Please do not include personal or contact information.
Feedback