Rare Disease Advisory Council (RDAC)

The Rare Disease Advisory Council advises the Governor, the Legislature, and the Department of Public Health on the incidence of rare disease within the Commonwealth and the status of the rare disease community.

About RDAC

The Rare Disease Advisory Council was established by an act promoting a resilient health care system that puts patients first (Section 26 of Chapter 260 of the Acts of 2020).

RDAC Mission Statement

The Massachusetts Rare Disease Advisory Council’s mission is to provide guidance and recommendations on rare disease incidence and the status and needs of the rare disease community to the governor, the legislature, and the department of public health with the goal of improving the lives of people impacted by a rare disease in the Commonwealth. 

RDAC Priorities

Upcoming meetings

Council members

Related organizations

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