Public Meeting Notice

Public Meeting Notice  Newborn Screening Advisory Committee Meeting — July 9, 2025

Wednesday, July 9, 2025
4 p.m. - 6 p.m.
Posted: January 7, 2025 8:28 a.m.

Overview

This meeting will be held virtually.

Agenda

  1. Welcome
  2. 4/9/25 Meeting Minutes Review and Vote for Approval
  3. Pilot Screening Disorders
    1. A brief review of the initial experience with screening for the two new pilots (GAMT and MPSII) and with the implementation of GAGs in the second tier of screening for the MPS disorders.
  4. Krabbe Presentation
  5. How to prioritize conditions for discussion.
  6. Listening Session
    • 20-minute public comment period. Members of the public are invited to share comments or make brief presentations of no longer than 3 minutes. Please pre-register your participation by emailing Tresa.Glover-Smith@mass.gov no later than Tuesday, 7/8/25. The moderator will call on individuals who register to share comments in the order in which those registrations are received.

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