Posted:
October 28, 2024 3:20 p.m.
- This page, Newborn Screening Advisory Committee Meeting — November 4, 2024, is offered by
- Massachusetts Newborn Screening Advisory Committee
- Bureau of Infectious Disease and Laboratory Sciences
- Department of Public Health
Public Meeting Notice
Public Meeting Notice Newborn Screening Advisory Committee Meeting — November 4, 2024
Contact
Tresa Glover-Smith, Program Coordinator II
Address
Bureau of Infectious Disease and Laboratory Sciences
305 South Street, Jamaica Plain, MA 02130
Overview
This meeting will be held virtually.
Meeting ID: 969 5092 1654
Passcode: 658789
Meeting Minutes
Open DOCX file, 394.17 KB,
NBSAC meeting minutes, 11.4.2024
(English, DOCX 394.17 KB)
Agenda
- Determination of quorum
- Welcome and Introductions
- Approval of minutes from November 18, 2023, meeting.
- MPSII brief review and update
- VOTE
- NBSAC Website Development
- Review of draft NEWBORN SCREENING SUBMISSION FORM (Suggested Conditions/Disorders to be Added to the MA Newborn Screening Panel)
- Review process for ongoing review of Pilot Screens and determination to move to mandatory panel.
- New Legislation requiring DMD screening be added to the panel
HB4999 An Act promoting access to midwifery care and out-of-hospital birth options
SECTION 18. Section 110A of said chapter 111, as appearing in the 2022 Official Edition, is hereby amended by striking out the first paragraph and inserting in place thereof the following paragraph:-
The physician attending a newborn child shall cause said child to be subjected to tests for phenylketonuria, cretinism, Duchenne muscular dystrophy and such other specifically treatable genetic or biochemical disorders or treatable infectious diseases which may be determined by testing as specified by the commissioner. The commissioner shall convene an advisory committee on newborn screening to assist the commissioner in determining which tests are necessary; provided, however, that said advisory committee shall convene not less than twice per year. - Discuss possible future plans for legislative briefing about NBSAC
- Discussion of Possible Lived Experience Testimonials During Disorder Presentations
- Request for Nomination of Potential New Members
- Listening Session
- 20-minute public comment period. Members of the public are invited to share comments or make brief presentations of no longer than 3 minutes. Please pre-register your participation by emailing Tresa.Glover-Smith@mass.gov no later than 11/4/2024. The moderator will call on individuals who register to share comments in the order in which those registrations are received.
Contact
Address
Bureau of Infectious Disease and Laboratory Sciences
305 South Street, Jamaica Plain, MA 02130