Posted:
July 24, 2025 10:37 a.m.
- This page, Newborn Screening Advisory Committee Meeting — October 29, 2025, is offered by
- Massachusetts Newborn Screening Advisory Committee
- Bureau of Infectious Disease and Laboratory Sciences
- Department of Public Health
Public Meeting Notice
Public Meeting Notice Newborn Screening Advisory Committee Meeting — October 29, 2025
Overview
This meeting will be held virtually.
Meeting Minutes
Open DOCX file, 105.88 KB,
Newborn Screening Advisory Committee meeting minutes – October 29, 2025
(English, DOCX 105.88 KB)
Agenda
- Welcome & Introductions
- 7/9/25 Meeting Minutes Review and Vote for Approval
- Krabbe Disease
- Presentation by Dr. Joseph Orsini
- Discussants: Dr. Joshua Baker, Dr. Joanne Kurtzberg, Dr. Florian Eichler
- Vote
- Review of process for evaluating condition nominations.
- Status of implementing DMD, pilots and mandates
- Listening Session
- 20-minute public comment period. Members of the public are invited to share comments or make brief presentations of no longer than 3 minutes. Note our next condition for discussion will be Metachromatic Leukodystrophy (MLD).
- Please pre-register your participation by emailing Tresa.Glover-Smith@mass.govno later than Tuesday, 10/28/25. The moderator will call on individuals who register to share comments in the order in which those registrations are received.