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Public Meeting Notice

Public Meeting Notice  Rare Disease Advisory Council meeting

Thursday, June 23, 2022
9 a.m. - 11 a.m.
Posted: June 15, 2022 9 a.m.
Meeting link 

Overview   of Rare Disease Advisory Council meeting

Remote quarterly meeting of the RDAC. Join on Zoom.

Meeting Minutes

Open DOCX file, 30.35 KB,  Rare Disease Advisory Council meeting minutes 6.23.22 (English, DOCX 30.35 KB)

Agenda

  • Welcome
  • Introductions:
    • RDAC member:  Lena Joseph
    • RDAC Coordinator:  Mary Lou Woodford
  • Roll Call 
  • Vote: to approve 3/31/22 meeting minutes
  • Patient Speaker:  Michele Rhee
  • Panel Discussion: What can RDACs achieve?
    • Tara Britt, Associate Chair, North Carolina Rare Disease Advisory Council
    • Dr. Nadia Falah, member, West Virginia Advisory Council on Rare Diseases
    • Dr. Scott Strome, Chair, Tennessee Rare Disease Advisory Council 
  • Chairperson Updates
    • Steering Committee Meeting held May 27, 2022
    • Review RDAC activities in authorizing legislation
    • Sub Committees
    • July RDAC Meeting – July 28, 2022, 9-11AM
  • Member Announcements
  • Adjourn

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