- This page, Rare Disease Advisory Council (RDAC) Meeting, is offered by
- Rare Disease Advisory Council
- Department of Public Health
Public Meeting Notice
Public Meeting Notice Rare Disease Advisory Council (RDAC) Meeting
Posted:
March 10, 2023 10:25 a.m.
Contact
Mary Lou Woodford, RDAC Coordinator
Overview
Meeting Minutes
Open DOCX file, 37.66 KB,
RDAC Meeting Minutes 3.16.23
(English, DOCX 37.66 KB)
Agenda
Agenda:
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Welcome
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Roll Call
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VOTE: to approve the 1/19/23 meeting minutes
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Guest Speaker: Representative Dylan Fernandes
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Introduction of new RDAC member: Senator Paul Feeney
Workgroup update
- Workgroup 1 update – Tai Pasquini
- Discussion
- Workgroup 2 update – Jenn McNary
- Discussion
- Workgroup 3 update – Lena Joseph
- Discussion
Presentation: National Organization for Rare Disorders (NORD) Resources
Announcements
Next full council meeting: May 18, 2023, 9:00 am – 11:00 am