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Mass.gov

This page, Rare Disease Advisory Council (RDAC) Meeting, is offered by
Rare Disease Advisory Council
Department of Public Health

Public Meeting Notice

Public Meeting Notice Rare Disease Advisory Council (RDAC) Meeting

Name: Rare Disease Advisory Council (RDAC) Meeting
Start: 2023-03-16T09:00:00-0400 - 2023-03-16T11:00:00-0400

Thursday, March 16, 2023

9 a.m. - 11 a.m.

Posted: March 10, 2023 10:25 a.m.

Join via Zoom

Contact for Rare Disease Advisory Council (RDAC) Meeting

Mary Lou Woodford, RDAC Coordinator

Online

Email Mary Lou Woodford, RDAC Coordinator at marylou.woodford@mass.gov

Overview of Rare Disease Advisory Council (RDAC) Meeting

Join this meeting via Zoom

Meeting Minutes

Open DOCX file, 37.66 KB, RDAC Meeting Minutes 3.16.23 (English, DOCX 37.66 KB)

Agenda

Agenda:

Welcome
Roll Call
VOTE: to approve the 1/19/23 meeting minutes
Guest Speaker: Representative Dylan Fernandes
Introduction of new RDAC member: Senator Paul Feeney

Workgroup update

Workgroup 1 update – Tai Pasquini
Discussion
Workgroup 2 update – Jenn McNary
Discussion
Workgroup 3 update – Lena Joseph
Discussion

Presentation: National Organization for Rare Disorders (NORD) Resources

Announcements

Next full council meeting: May 18, 2023, 9:00 am – 11:00 am

Contact for Rare Disease Advisory Council (RDAC) Meeting

Online

Email Mary Lou Woodford, RDAC Coordinator at marylou.woodford@mass.gov

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