Skip to main content
Public Meeting Notice

Public Meeting Notice  Rare Disease Advisory Council (RDAC) Meeting

Thursday, July 20, 2023
9 a.m. - 11 a.m.
Posted: July 17, 2023 12:34 p.m.
Join via Zoom 

Contact   for Rare Disease Advisory Council (RDAC) Meeting

Mary Lou Woodford, RDAC Coordinator

Online

Email Mary Lou Woodford, RDAC Coordinator at marylou.woodford@mass.gov

Overview   of Rare Disease Advisory Council (RDAC) Meeting

Join this meeting via Zoom

Meeting Minutes

Open DOCX file, 34.99 KB,  Rare Disease Council Meeting Minutes - July 20, 2023 (English, DOCX 34.99 KB)

Agenda

  • Welcome  

    • Introduction of new council member, Gail Ryan, PharmD, who will be completing Dr. Michael Sherman’s term.  

  • Roll Call   

  • Panel Discussion: The challenges of managing complex patients in a rural setting 

    • Dr. Ryan Thompson 

    • Dr. Gregory Braden 

    • Dr. Hanno Muellner 

  • Presentation: The ECHO Project presented by Ken Fraser, Outreach Manager, University of New Mexico Health Sciences Center  

  • Discussion 
  • Workgroup update 
    • Workgroup 1 update – Dr. David Miller 
    • Discussion  
  • VOTE: to approve the 5/18/23 meeting minutes  
  • Announcements 

Next Full Council Meeting:  September 21, 2023, 9:00 am – 11:00 am 

Contact   for Rare Disease Advisory Council (RDAC) Meeting

Online

Email Mary Lou Woodford, RDAC Coordinator at marylou.woodford@mass.gov

Help Us Improve Mass.gov  with your feedback

Please do not include personal or contact information.
Feedback