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Public Meeting Notice

Public Meeting Notice  Rare Disease Advisory Council (RDAC) Steering Committee

Thursday, August 17, 2023
2 p.m. - 3 p.m.
Posted: August 14, 2023 1:21 p.m.
Join the meeting via Zoom 

Contact   for Rare Disease Advisory Council (RDAC) Steering Committee

Mary Lou Woodford, RDAC Coordinator

Online

Email Mary Lou Woodford, RDAC Coordinator at marylou.woodford@mass.gov

Overview   of Rare Disease Advisory Council (RDAC) Steering Committee

Steering Committee Meeting  

Join via Zoom

Agenda

Welcome

  • Roll Call  

  • VOTE on approval of minutes from last Steering Committee meeting 6.8.23 

  • Workgroup 1 update – David Miller 

  • Workgroup 2 & 3 update – Jenn McNary 

  • Review plans for September full council meeting 

    • Autism Report presentation 

    • Discuss plans for RDAC annual report, including recommendation(s) 

  • Plans for the virtual town hall in the Fall 

  • Social media presence for RDAC 

  • Tracking legislation of interest  

  • Announcements  

  • Adjourn

Meeting Minutes

Open DOCX file, 23.69 KB,  Rare Disease Council Meeting Minutes - August 17, 2023 (English, DOCX 23.69 KB)

Contact   for Rare Disease Advisory Council (RDAC) Steering Committee

Online

Email Mary Lou Woodford, RDAC Coordinator at marylou.woodford@mass.gov

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