Public Meeting Notice

Public Meeting Notice  RDAC Full Council Meeting

Thursday, September 19, 2024
9 a.m. - 11 a.m.
Posted: July 12, 2024 9:06 a.m.

Contact   for RDAC Full Council Meeting

Mary Lou Woodford, RDAC Coordinator

Overview   of RDAC Full Council Meeting

Agenda:

  • Welcome  
  • Roll Call  
  • VOTE to approve minutes from the last full council meeting (July 18, 2024)
  • Guest Speaker: Katherin Joyette , Rare Disease Patient  
  • Guest Speaker: Hayley Mason, MPH, Policy Analyst, National Organization for Rare Disorders (NORD)  
  • Guest Speaker: Alison Griffin, MS, RD, CSO, CNSC, LDN, Senior Clinical Dietician, New England Life Care, Inc  
  • Q & A, discussion and development of recommendations on medical nutrition for the annual report
  • Update on healthcare legislation – Representative Jay Livingstone
  • Announcements
  • NEXT FULL COUNCIL MEETING: Scheduled for November 21, 2024.  
  • Adjourn 

Contact   for RDAC Full Council Meeting

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