Posted:
July 12, 2024 9:06 a.m.
- This page, RDAC Full Council Meeting, is offered by
- Department of Public Health
- Rare Disease Advisory Council
Public Meeting Notice
Public Meeting Notice RDAC Full Council Meeting
Contact
Mary Lou Woodford, RDAC Coordinator
Overview
Agenda:
- Welcome
- Roll Call
- VOTE to approve minutes from the last full council meeting (July 18, 2024)
- Guest Speaker: Katherin Joyette , Rare Disease Patient
- Guest Speaker: Hayley Mason, MPH, Policy Analyst, National Organization for Rare Disorders (NORD)
- Guest Speaker: Alison Griffin, MS, RD, CSO, CNSC, LDN, Senior Clinical Dietician, New England Life Care, Inc
- Q & A, discussion and development of recommendations on medical nutrition for the annual report
- Update on healthcare legislation – Representative Jay Livingstone
- Announcements
- NEXT FULL COUNCIL MEETING: Scheduled for November 21, 2024.
- Adjourn