Posted:
July 12, 2024 9:06 a.m.
- This page, RDAC Full Council Meeting, is offered by
- Department of Public Health
- Rare Disease Advisory Council
Public Meeting Notice
Public Meeting Notice RDAC Full Council Meeting
Contact for RDAC Full Council Meeting
Mary Lou Woodford, RDAC Coordinator
Overview of RDAC Full Council Meeting
Agenda:
- Welcome
- Roll Call
- VOTE to approve minutes from the last full council meeting (July 18, 2024)
- Guest Speaker: Katherin Joyette , Rare Disease Patient
- Guest Speaker: Hayley Mason, MPH, Policy Analyst, National Organization for Rare Disorders (NORD)
- Guest Speaker: Alison Griffin, MS, RD, CSO, CNSC, LDN, Senior Clinical Dietician, New England Life Care, Inc
- Q & A, discussion and development of recommendations on medical nutrition for the annual report
- Update on healthcare legislation – Representative Jay Livingstone
- Announcements
- NEXT FULL COUNCIL MEETING: Scheduled for November 21, 2024.
- Adjourn