Posted:
July 12, 2024 9:06 a.m.
- This page, RDAC Full Council Meeting, is offered by
- Department of Public Health
- Rare Disease Advisory Council
Public Meeting Notice
Public Meeting Notice RDAC Full Council Meeting
Contact
Mary Lou Woodford, RDAC Coordinator
Overview
- Welcome
- Roll Call
- Guest Speaker: Jessica Souza, Rare Disease Patient
- Guest Speaker: Massachusetts DPH Commissioner Robbie Goldstein, MD, PhD
- Evaluating the Economic Burden of Rare Disease in Massachusetts: Council member Tai Pasquini, MPA, PhD
- Discussion and Vote to accept final recommendations for the Massachusetts Newborn Screening Program
- Vote to establish a subcommittee for Legislative Initiatives
- Vote to approve minutes from the last full council meeting (September 19, 2024)
- Discussion: Medical Nutrition
- Annual report timeline for approval and submission (Submission due December 31)
- Announcements
- The next full council meeting is scheduled for January 16, 2025.
- Adjourn