- This page, RDAC Full Council Meeting, is offered by
- Department of Public Health
- Rare Disease Advisory Council
Public Meeting Notice RDAC Full Council Meeting
Contact
Mary Lou Woodford, RDAC Coordinator
Overview
Agenda:
-
Welcome
-
Roll Call
-
VOTE to approve minutes from the last full council meeting (March 28, 2024)
-
Guest Speaker: Dr. Michelle Rengarajan
-
Newborn Screening: Guest Speaker - Allison Herrity, MPH
-
Senior Policy Analyst, National Organization for Rare Disorders
-
-
Massachusetts Newborn Screening Program: Guest Speakers:
-
Anne Marie Comeau, PhD Deputy Director, UMass New England Newborn Screening Program; Professor of Pediatrics, UMass Chan Medical School
-
Dawn Fukuda, ScM Assistant Commissioner, Director of the Bureau of Infectious Diseases and Laboratory Sciences
-
-
Community Engagement Workgroup and Legislative Initiatives Workgroup update: Jenn McNary
-
Renewals/New Appointments/ Steering Committee
Announcements
Next full council meeting: Scheduled for July 18, 2024.