- This page, RDAC Full Council Meeting, is offered by
 - Department of Public Health
 - Rare Disease Advisory Council
 
Public Meeting Notice RDAC Full Council Meeting
Contact
Mary Lou Woodford, RDAC Coordinator
Overview
Agenda:
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Welcome
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Roll Call
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VOTE to approve minutes from the last full council meeting (March 28, 2024)
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Guest Speaker: Dr. Michelle Rengarajan
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Newborn Screening: Guest Speaker - Allison Herrity, MPH
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Senior Policy Analyst, National Organization for Rare Disorders
 
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Massachusetts Newborn Screening Program: Guest Speakers:
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Anne Marie Comeau, PhD Deputy Director, UMass New England Newborn Screening Program; Professor of Pediatrics, UMass Chan Medical School
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Dawn Fukuda, ScM Assistant Commissioner, Director of the Bureau of Infectious Diseases and Laboratory Sciences
 
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Community Engagement Workgroup and Legislative Initiatives Workgroup update: Jenn McNary
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Renewals/New Appointments/ Steering Committee
 
Announcements
Next full council meeting: Scheduled for July 18, 2024.