Posted:
January 15, 2026 10:28 a.m.
- This page, RDAC Full Council Meeting — January 22, 2026 , is offered by
- Rare Disease Advisory Council
- Department of Public Health
Public Meeting Notice
Public Meeting Notice RDAC Full Council Meeting — January 22, 2026
Overview
This is an online meeting via Zoom.
Agenda
- Welcome by Dr. Dylan Tierney, Chair
- Roll Call
- Vote to approve minutes from the last full council meeting (November 20, 2025)
- Speaker: Sarah Cornell, parent of a child with a rare disease.
- RDAC Priorities for 2026
- Telehealth Overview and summary of Health Policy Commission study – Yue Huang
- Legislative summary on telehealth – Representative Jay Livingstone
- Subcommittee Updates
- Policy Subcommittee- Glenda Thomas
- Research Subcommittee – Tai Pasquini
- Healthcare Transitions Subcommittee – Andrew Dwyer
- Newborn Screening update – Dr Olaf Bodamer
- Announcements
- NEXT FULL COUNCIL MEETING
Scheduled for March 26nd, 2026, from 9:00 – 11:00 am.
- NEXT FULL COUNCIL MEETING
- Adjourn