Posted:
January 20, 2026 12:19 p.m.
- This page, RDAC Full Council Meeting — July 23, 2026, is offered by
- Rare Disease Advisory Council
- Bureau of Infectious Disease and Laboratory Sciences
- Department of Public Health
Public Meeting Notice
Public Meeting Notice RDAC Full Council Meeting — July 23, 2026
Overview
This is an online meeting via Zoom.
Agenda
Welcome by Dr. Dylan Tierney, Chair
Roll Call
Vote to approve minutes from the last full council meeting (May 21, 2026)
Rare Disease Speaker: Undiagnosed Disease Network (UDN)
- Andria & Brendon Paradis
- Kimberly LeBlanc, MS, CGC
Revisions to the RDAC Standard Operating Procedure (SOP)
Vote to approve revised SOP
RDAC Policy Subcommittee update
- Glenda Thomas, Chair
RDAC Research Subcommittee Update
- Tai Pasquini, MPA, PhD
RDAC Healthcare Transitions Subcommittee update
- Andrew Dwyer, PhD, FNP-BC
Newborn Screening-Rare Disease Adult Provider Directory
- Olad Bodamer, MD PhD
Announcements
- Next Full Council Meeting: September 17, 2026, from 9:00 – 11:00 am.
Adjourn