Public Meeting Notice  RDAC Full Council Meeting — March 26, 2026

Overview

This is an online meeting via Zoom.

Agenda

• Welcome by Dr. Dylan Tierney, Chair
• Roll Call
• Vote to approve minutes from the last full council meeting (January 22, 2026)
• Speaker: Aprill Fascino,  rare disease speaker
• Telehealth Task Force overview
  • Dr. Jess Zeidman, Deputy Commissioner/ Chief Medical Officer, DPH,Task force member
• Telehealth Panel Discussion
  • Heather Meyers, Senior Director of Virtual Care at Boston Children’s Hospital
  • Dr. Amy Kritzer, Director of Clinical Genetics and Genomics at Boston Children’s Hospital
  • Dr. Stacey Cook, Medical Director of Outpatient Complex Care
  • Adam Delmolino, Senior Director, Virtual Care and Clinical Affairs, Massachusetts Health and Hospital Association
• Newborn Screening update and Discussion – Dr Olaf Bodamer
• Subcommittee Updates
  • Policy Subcommittee- Glenda Thomas
  • Research Subcommittee – Tai Pasquini
  • Healthcare Transitions Subcommittee – Andrew Dwyer
• Announcements
  • Next Full Council Meeting
    Scheduled for May 21, 2026, from 9:00 – 11:00 am.
• Adjourn