Posted:
January 20, 2026 10:47 a.m.
- This page, RDAC Full Council Meeting — May 21, 2026, is offered by
- Rare Disease Advisory Council
- Bureau of Infectious Disease and Laboratory Sciences
- Department of Public Health
Public Meeting Notice
Public Meeting Notice RDAC Full Council Meeting — May 21, 2026
Overview
This is an online meeting via Zoom.
Agenda
- Welcome by Dr. Dylan Tierney, Chair
- Introduce new member, Dr. William Keough
- Roll Call
- Vote to approve minutes from the last full council meeting (March 26, 2026)
- Rare Disease Speaker: James Hoyne
- The National Organization for Rare Disorders (NORD) State Report Card Overview
- Carolyn Sheriden, MPH, Associate Director of State Policy
- Health Policy Commission Report on Medical Nutrition
- Yue Huang, MS, Associate Director, Office of Pharmaceutical Policy and Analysis
- Yunge Xiao, MS, Research Analyst
- RDAC Policy Subcommittee review and update on Medical Nutrition
- Glenda Thomas, Chair
- Representative Joseph McKenna
- Newborn Screening Advisory Committee Update and Discussion
- Olaf Bodamer, MD, PhD, FACMG, RDAC council member and Massachusetts Newborn Screening Advisory Committee member
- Announcements
- NEXT FULL COUNCIL MEETING Scheduled for July 23, 2026, from 9:00 – 11:00 am.
- Adjourn