Posted:
January 6, 2026 9:48 a.m.
- This page, RDAC Policy Subcommittee Meeting — January 14, 2026, is offered by
- Rare Disease Advisory Council
- Department of Public Health
Public Meeting Notice
Public Meeting Notice RDAC Policy Subcommittee Meeting — January 14, 2026
Overview
This is an online meeting.
Agenda
Welcome: Subcommittee Chair – Glenda Thomas
- Roll Call
- Review and approval of meeting minutes from last meeting 10/22/25
- Legislative update – Representative Jay Livingstone
- Discussion on current PCA bills – Bill H.1934 and S.886 – Ali Mahady
- Impact of Genetic Counselors not being included in insurance reimbursement on the rare disease community – Kristen Shannon
- Discussion on priorities and plans for 2026
- Announcements
Meeting schedule for 2026 - Adjourn