Public Meeting Notice  Workgroup 2 and Workgroup 3 Joint Subcommittee Meeting

Remote Meeting:

https://us06web.zoom.us/j/88531084386?pwd=w0v3wLj7DgwgbyBcg82JuBNdeauJDp.1

Agenda:

Welcome

• Attendance Roll Call
• Survey Plan: timeline
• Discussion: Survey Marketing Plan
• Discussion: Survey results validation plan
• Discussion: Development of profiles
  • Profile of Social Support and Resources in Massachusetts
  • Profile of rare disease expert individuals, community-based organizations, voluntary organizations, healthcare providers, and other public or private organizations with an interest in rare diseases in Massachusetts.
• Define the next steps

Adjourn