Parkinson’s Disease Registry and Advisory Committee

The Massachusetts Department of Public Health (MDPH) has formed an Advisory Committee to advise and make recommendations to the MDPH for development, implementation, and collection of information necessary to determine the incidence and prevalence of Parkinson’s disease in the Commonwealth.

About Parkinson’s Disease Registry and Advisory Committee

The statutory language establishing a Parkinson’s Disease Registry and Advisory Committee can be found in Section 45, p.364 of House, No. 4002.

The statutory language specifies that membership should include representatives who are physicians or persons active in the field of Parkinson’s Disease or public health. The committee should consist of:

  • A member appointed by the Commissioner
  • Three members who are physicians, one of whom is a general neurologist, one of whom is a movement disorder specialist and one of whom is a primary care physician
  • One member who is a health informaticist
  • Two members who are population health researchers familiar with registries
  • Two members who are Parkinson’s disease researchers
  • Two members who have been diagnosed with Parkinson’s disease

Upcoming meetings

No upcoming events scheduled

Materials

The report was voted and accepted on May 25, 2022 by the Parkinson’s Disease Registry and Advisory Committee.

Council members

  • Neurologist (General)

    Dr. Samuel Frank

    Associate Professor of Neurology, Harvard Medical School, Beth Israel Deaconess Medical Center

  • Neurologist (Movement Disorder Specialist)

    Dr. Anindita Deb

    Associate Professor of Neurology and Neurosurgery, University of Massachusetts Chan Medical School, Co-Chief, Division of Movement Disorders

  • Neurologist (Primary Care Provider)

    Dr. Terrell Y Johnson

    Assistant Professor of Medicine, Boston University Medical School

  • Health Informaticist

    Dr. Glenn Tucker

    Chief Medical Officer, Vice President of Medical Affairs, Greater New Bedford Community Health Center

  • Parkinson’s Disease Researcher

    Brett Miller

    Owner/Founder 110 Fitness

  • Parkinson’s Disease Researcher

    Cathi A Thomas, MSN, RN, CNRN

    Program Director, Parkinson’s Disease and Movement Disorders Center Boston Medical Center, Boston University

  • Diagnosed with Parkinson’s Disease

    James K Cornell

    Managing Partner, Fiduciary Wealth Partners

  • Diagnosed with Parkinson’s Disease

    Matt Keswick

    Keswick Consulting

  • Commissioner’s Designee

    Lauren Fogarty

    Epidemiologist, Bureau of Environmental Health, Department of Public Health

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