Skip to main content
Public Meeting Notice

Public Meeting Notice  Rare Disease Advisory Council (RDAC) Meeting

Thursday, May 18, 2023
9 a.m. - 11 a.m.
Posted: May 11, 2023 2 p.m.
Join via Zoom 

Contact   for Rare Disease Advisory Council (RDAC) Meeting

Mary Lou Woodford, RDAC Coordinator

Online

Email Mary Lou Woodford, RDAC Coordinator at marylou.woodford@mass.gov

Overview   of Rare Disease Advisory Council (RDAC) Meeting

Join this meeting via Zoom

Meeting Minutes

Open DOCX file, 36.93 KB,  Rare Disease Advisory Council (RDAC) Meeting Minutes May 18, 2023 (English, DOCX 36.93 KB)

Agenda

  • Welcome
  • Roll Call 
  • VOTE: to approve the 3/16/23 meeting minutes
  • Guest Speaker: Representative Dylan Fernandes

Workgroup update:

Workgroup 1 update – David Miller and Tai Pasquini

  • Discussion

Workgroup 2 update – Jenn McNary

  • Discussion

Workgroup 3 update – Lena Joseph

  • Discussion

Presentation: MassHealth Long-Term Services and Supports

Charles (Chuck) T Pu, MD, FACP, CMD 

Senior Medical Director | EOHHS MassHealth Office of Long-Term Services & Supports

Announcements

 

NEXT FULL COUNCIL MEETING: July 20, 2023, 9:00 am – 11:00 am

Additional Resources   for Rare Disease Advisory Council (RDAC) Meeting

Open DOCX file, 263.51 KB,  Massachusetts Rare Disease Advisory Council: Prevalence Outline Draft (English, DOCX 263.51 KB)

Contact   for Rare Disease Advisory Council (RDAC) Meeting

Online

Email Mary Lou Woodford, RDAC Coordinator at marylou.woodford@mass.gov

Help Us Improve Mass.gov  with your feedback

Please do not include personal or contact information.
Feedback