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Public Meeting Notice

Public Meeting Notice  Rare Disease Advisory Council (RDAC) Meeting

Thursday, May 18, 2023
9 a.m. - 11 a.m.
Posted: May 11, 2023 2 p.m.
Join via Zoom 

Contact

Mary Lou Woodford, RDAC Coordinator

Online

Email Mary Lou Woodford, RDAC Coordinator at marylou.woodford@mass.gov

Overview

Join this meeting via Zoom

Meeting Minutes

Open DOCX file, 36.93 KB,  Rare Disease Advisory Council (RDAC) Meeting Minutes May 18, 2023 (English, DOCX 36.93 KB)

Agenda

  • Welcome
  • Roll Call 
  • VOTE: to approve the 3/16/23 meeting minutes
  • Guest Speaker: Representative Dylan Fernandes

Workgroup update:

Workgroup 1 update – David Miller and Tai Pasquini

  • Discussion

Workgroup 2 update – Jenn McNary

  • Discussion

Workgroup 3 update – Lena Joseph

  • Discussion

Presentation: MassHealth Long-Term Services and Supports

Charles (Chuck) T Pu, MD, FACP, CMD 

Senior Medical Director | EOHHS MassHealth Office of Long-Term Services & Supports

Announcements

NEXT FULL COUNCIL MEETING: July 20, 2023, 9:00 am – 11:00 am

Additional Resources

Open DOCX file, 263.51 KB,  Massachusetts Rare Disease Advisory Council: Prevalence Outline Draft (English, DOCX 263.51 KB)

Contact

Online

Email Mary Lou Woodford, RDAC Coordinator at marylou.woodford@mass.gov

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