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Public Meeting Notice

Public Meeting Notice  Rare Disease Advisory Council (RDAC) Meeting

Thursday, January 18, 2024
9 a.m. - 11 a.m.
Posted: January 16, 2024 9:21 a.m.

Contact   for Rare Disease Advisory Council (RDAC) Meeting

Mary Lou Woodford, RDAC Coordinator

Online

Email Mary Lou Woodford, RDAC Coordinator at marylou.woodford@mass.gov

Overview   of Rare Disease Advisory Council (RDAC) Meeting

Join remote meeting via Zoom

Agenda:

  • Welcome  

  • Roll Call   

  • Guest Speaker: Rachel Bennett, advocate and parent of a child with a rare disease 

  • VOTE to approve minutes from the last full council meeting (November 16, 2023) 

  • RDAC annual report  

  • RDAC Priorities for 2024 

  • Workgroup 2 & 3 Update 

Announcements: RDAC Legislative Briefing  

Next full council meeting: Scheduled for March 21, 2024. We need to reschedule for March 14 or March 28.  

Adjourn 

Meeting Minutes

Open DOCX file, 38.24 KB,  January 18, 2024 - Rare Disease Advisory Council Meeting Minutes (English, DOCX 38.24 KB)

Additional Resources   for Rare Disease Advisory Council (RDAC) Meeting

Open DOCX file, 18.18 KB,  January 18, 2023 - Rare Disease Advisory Council Meeting Agenda (English, DOCX 18.18 KB)

Contact   for Rare Disease Advisory Council (RDAC) Meeting

Online

Email Mary Lou Woodford, RDAC Coordinator at marylou.woodford@mass.gov

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