Name: Rare Disease Advisory Council (RDAC) Meeting
Start: 2024-03-28T09:00:00-0400 - 2024-03-28T11:00:00-0400

Contact

Overview

Join remote meeting via Zoom

Agenda:

Welcome
Roll Call
VOTE to approve minutes from the last full council meeting (January 18, 2024)
Guest Speaker: Sheilah Gauch and Jennifer Vitelli, both parents of children diagnosed with a rare disease and co-facilitators of the PANDAS/PANS Advisory Council.
Guest Speaker: Carolyn Sheridan, MPH
- State Policy Manager, NORD
Community Engagement Workgroup update: Jenn McNary
- Website Redesign
Legislative Briefing Summary
Renewals/New Appointments/ Steering Committee
Announcements
Next council meeting: Scheduled for May 16, 2024.
Adjourn

Contact

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Public Meeting Notice Rare Disease Advisory Council (RDAC) Meeting

Contact

Mary Lou Woodford, RDAC Coordinator

Online

Overview

Meeting Minutes

Additional Resources

Contact

Mary Lou Woodford, RDAC Coordinator

Online

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