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Public Meeting Notice

Public Meeting Notice  Rare Disease Advisory Council (RDAC) Steering Committee

Thursday, August 25, 2022
10 a.m. - 11 a.m.
Posted: August 18, 2022 8:55 a.m.
Join the meeting via Zoom 

Contact   for Rare Disease Advisory Council (RDAC) Steering Committee

Mary Lou Woodford, RDAC Coordinator

Online

Email Mary Lou Woodford, RDAC Coordinator at marylou.woodford@mass.gov

Overview   of Rare Disease Advisory Council (RDAC) Steering Committee

Steering Committee Meeting  

Meeting ID: 839 3180 5486 
Passcode: 732289 

Join via Zoom.

Meeting Minutes

Open DOCX file, 24.67 KB,  RDAC Steering Meeting Minutes 8.25.22 (English, DOCX 24.67 KB)

Agenda

Welcome  

  • Roll Call (Call to order if a quorum is met)  

  VOTE on approval of minutes from last Steering Committee meeting 7.14.22 

  • Review Council Priorities 

  1. Improving healthcare access and quality for people with rare diseases 

  2. Establishing social supports for people impacted by rare diseases 

  1. Strengthening the  rare disease community in Massachusetts 

  • Discussion 

VOTE to approve the priorities for the Council   

  • Review Operating Procedures Draft 

  • Discussion 

VOTE to approve Operating Procedures 

Adjourn 

Download Agenda

Steering Committee Meeting Agenda Aug 25 (Docx)

Contact   for Rare Disease Advisory Council (RDAC) Steering Committee

Online

Email Mary Lou Woodford, RDAC Coordinator at marylou.woodford@mass.gov

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