Name: RDAC Full Council Meeting
Start: 2025-03-27T09:00:00-0400 - 2025-03-27T11:00:00-0400

Overview

Welcome
- Introduce new council members, Dr. Stacey Cook, Alison Griffin and Valarie Molyneaux
Roll Call
Vote to approve minutes from the last full council meeting (January 23, 2024)
Guest Speaker: Rare Disease Speaker
- “Understanding the Challenges of Transitioning from Pediatric Care to Adult Care for Rare Disease Patients”
- Guest Speaker: Andrew A. Dwyer, PhD, FNP-BC
- Special Guest: Nathan Grant
Discussion – Transitioning from pediatric care to adult care for rare disease patients
Guest Speaker: Massachusetts State Representative, James McGovern
- Introduce by: Representative Joseph McKenna
Medical Nutrition Discussion
Subcommittee Updates
- Policy Subcommittee- Glenda Thomas
- Research Subcommittee – Tai Pasquini
- Steering Subcommittee – Dylan Tierney
RDAC membership engagement – Tai Pasquini
Announcements
Next Council Meeting: Scheduled for May 22, 2025.
Adjourn

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Public Meeting Notice RDAC Full Council Meeting

Overview

Meeting Minutes

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