- Posted: July 12, 2024 9:06 a.m.
- Last Updated: October 15, 2024 12:57 a.m.
- This page, RDAC Steering Committee Meeting, is offered by
- Department of Public Health
- Rare Disease Advisory Council
Public Meeting Notice
Public Meeting Notice RDAC Steering Committee Meeting
Contact
Mary Lou Woodford, RDAC Coordinator
Overview
Welcome
- Roll Call
- VOTE on approval of minutes from last Steering Committee meeting 8.15.24
- Chair update
- Newborn Screening Program recommendations
- Discussion: medical nutrition
- The economic burden of rare disease in Massachusetts – Tai Pasquini
- Annual report review and timeline
- Plans for November full council meeting
- Announcements
- Adjourn
Meeting Minutes
Open DOCX file, 561.04 KB,
RDAC Steering Committee Meeting Minutes
(English, DOCX 561.04 KB)