Public Meeting Notice  RDAC Full Council Meeting

Join meeting via Zoom

Agenda:

• Welcome
• Roll Call  
• VOTE to approve minutes from the last full council meeting (May 16, 2024)
• Guest Speaker: Lesa Brackbill, Mom, Author and Advocate 
• Guest Speaker – Dr. Olaf Bodamer, a physician-scientist and geneticist
• Boston Children’s Hospital, Rare Disease Center of Excellence 
• Massachusetts Newborn Screening Program Panel
  • Panelists include:
    • Dr. Karen McAlmon, MD Chair, Massachusetts Newborn Screening Advisory Committee 
    • Anne Marie Comeau, PhD  Deputy Director, UMass New England Newborn Screening Program; Professor of Pediatrics, UMass Chan Medical School
    • H. Dawn Fukuda, ScM  Assistant Commissioner, Director of the Bureau of Infectious Diseases and Laboratory Sciences
    • Jim Ballin, Esq Deputy General Council, Massachusetts Department of Public Health
• Q & A  and Discussion 
• Update on the healthcare bill – Representative Jay Livingstone 
• Next full council meeting: Scheduled for September 19, 2024.
• Adjourn