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This page, Rare Disease Advisory Council meeting, is offered by
Rare Disease Advisory Council

Public Meeting Notice

Public Meeting Notice Rare Disease Advisory Council meeting

Name: Rare Disease Advisory Council meeting
Start: 2021-12-09T09:00:00-0500 - 2021-12-09T11:00:00-0500

Thursday, December 9, 2021

9 a.m. - 11 a.m.

Posted: November 30, 2021 12:20 p.m.
Last Updated: December 6, 2021 11:23 a.m.

Overview of Rare Disease Advisory Council meeting

Remote quarterly meeting of the RDAC. Join on Webex.

Meeting Minutes

Open DOCX file, 132.66 KB, RDAC Minutes December 9, 2021 (English, DOCX 132.66 KB)

Agenda

Welcome
Roll Call
Approval of 9/16/21 meeting minutes
Presentation from NORD (National Organization for Rare Disorders)
- Annissa Reed, MPH, State Policy Manager, Eastern Region
Discussion: Meeting procedures
Discussion: Working groups/Subcommittees
RDAC email list
Speaker(s) for future meetings
Member Announcements

Additional Resources for Rare Disease Advisory Council meeting

Open PPTX file, 15.09 MB, RDAC Presentation December 9, 2021 (English, PPTX 15.09 MB)

Open DOCX file, 22.38 KB, RDAC Presentation December 9, 2021 - Plain Text (English, DOCX 22.38 KB)

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