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Other Resources for CCM Members and Families

Find information and resources outside of MassHealth that may be relevant to the MassHealth Community Case Management (CCM) program and Continuous Skilled Nursing (CSN) services.

Table of Contents

Pediatric Palliative Care Network (PPCN)

Pediatric Palliative Care Network: (PPCN)-Managed by the Department of Public Health (DPH), PPCN aims to support eligible individuals, who are under 22 years old and living with a life-limiting diagnosis, and their families by providing unmet physical, social, emotional, and spiritual needs.

Adult Palliative Care Resources

Hospice & Palliative Care Federation of Massachusetts (HPCFM): HPCFM is a non-profit organization, founded in 1980, dedicated to advancing and promoting excellence in end-of-life care. Some members of HPCFM provide palliative care services for patients with life-limiting illnesses earlier in the course of their disease and who still may be in active treatment. The HPCFM website includes a directory to search for palliative care resources by town.

National Hospice and Palliative Care Organization (NHPCO): NHCPO is the nation’s largest membership organization for providers and professionals who care for people affected by serious and life-limiting illness.

Caregiver to Caregiver (C2C) Respite Network

The Federation for Children with Special Health Needs launched a new program in February 2024, called the Caregiver to Caregiver (C2C) Respite Network.

C2C Respite Network is a resource for families seeking respite whose children (age 0-26) need specialized support. Caregivers can request to receive and/or provide respite from another caregiver who has a child with special health needs. Caregivers apply to join the network and C2C will match families to one another based on:

  • The child’s medical and support needs
  • Where families live
  • Language and cultural identities and preferences

Staff provide initial and ongoing support to anyone involved in providing and receiving respite. A virtual learning platform will enable caregivers to participate in trainings, discussion forums and other learning opportunities. Once caregivers have been matched to one another, check-ins will be provided at least monthly. C2C staff speak English, Spanish, Portuguese, Vietnamese, and Chinese. 

Additional information can be found at https://fcsn.org/c2c/.

​​​​​​​Department of Developmental Services

Department of Developmental Services: (DDS)-A Department within the Executive Office of Health and Human Services (EOHHS) that provides supports to individuals living with intellectual and developmental disabilities.

​​​​​​​​​​​​​​Massachusetts Rehabilitation Commission

Massachusetts Rehabilitation Commission (MRC) – A department within the Executive Office of Health and Human Services (EOHHS) that supports individuals living with disabilities and focuses on training and employment, community living, and disability determination for federal benefit programs.

In-School Nursing for CCM Members

Many CCM members who attend school require in-school nursing services to support their education. Additional information about this process and the options available for CCM members are included in the In School Nursing FAQ: 

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