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Past events for Rare Disease Advisory Council

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Healthcare Transitions Subcommittee meeting - October 23, 2025

Thursday, October 23, 2025

4 p.m. - 5 p.m.
RDAC Steering Committee Meeting

Thursday, October 23, 2025

10:30 a.m. - 11:30 a.m.
RDAC Policy Subcommittee Meeting — October 22, 2025

Wednesday, October 22, 2025

10 a.m. - 11 a.m.
RDAC Policy Subcommittee Meeting

Wednesday, October 8, 2025

10 a.m. - 11 a.m.

This meeting was cancelled due to technical difficulties. It is rescheduled for October 22, 2025 10:00 am - 11:00 am.
RDAC Healthcare Transitions Subcommittee

Thursday, September 25, 2025

4 p.m. - 5 p.m.
RDAC Full Council Meeting

Thursday, September 25, 2025

9 a.m. - 11 a.m.
RDAC Research Subcommittee Meeting

Wednesday, September 17, 2025

9:30 a.m. - 10:30 a.m.

This meeting was cancelled due to a lack of a quorum.
RDAC Steering Committee Meeting

Thursday, August 28, 2025

10:30 a.m. - 11:30 a.m.
RDAC Full Council Meeting

Thursday, July 24, 2025

9 a.m. - 11 a.m.
RDAC Policy Subcommittee Meeting

Wednesday, July 9, 2025

10 a.m. - 11 a.m.
RDAC Steering Committee Meeting

Thursday, June 26, 2025

10:30 a.m. - 11:30 a.m.
Research Committee Meeting Agenda

Wednesday, June 18, 2025

9:30 a.m. - 10:30 a.m.
RDAC Full Council Meeting

Thursday, May 22, 2025

9 a.m. - 11 a.m.
RDAC Steering Committee Meeting

Thursday, April 17, 2025

10:30 a.m. - 11:30 a.m.
RDAC Policy Subcommittee Meeting Agenda

Wednesday, April 9, 2025

10 a.m. - 11 a.m.
RDAC Full Council Meeting

Thursday, March 27, 2025

9 a.m. - 11 a.m.
RDAC Research Committee Meeting

Wednesday, March 19, 2025

9:30 a.m. - 10:30 a.m.
RDAC Steering Committee Meeting

Thursday, February 27, 2025

10:30 a.m. - 11:30 a.m.
RDAC Full Council Meeting

Thursday, January 23, 2025

9 a.m. - 11 a.m.
RDAC Policy Subcommittee Meeting

Wednesday, January 8, 2025

10 a.m. - 11 a.m.
RDAC Steering Committee Meeting

Thursday, December 19, 2024

10:30 a.m. - 11:30 a.m.
CANCELLED - RDAC Legislative Initiatives Meeting

Monday, December 16, 2024

10:30 a.m. - 11:30 a.m.
RDAC Full Council Meeting

Thursday, November 21, 2024

9 a.m. - 11 a.m.
Cancelled - RDAC Legislative Initiatives Meeting

Monday, November 18, 2024

10:30 a.m. - 11:30 a.m.
Cancelled- RDAC Legislative Initiatives Meeting

Monday, October 21, 2024

10:30 a.m. - 11:30 a.m.
RDAC Steering Committee Meeting

Thursday, October 17, 2024

10:30 a.m. - 11:30 a.m.
RDAC Full Council Meeting

Thursday, September 19, 2024

9 a.m. - 11 a.m.
Postponed until further notice -Newborn Screening Ad Hoc meeting

Wednesday, September 18, 2024

2 p.m. - 3 p.m.
CANCELLED: RDAC Legislative Initiatives Meeting

Monday, September 16, 2024

10:30 a.m. - 11:30 a.m.
Cancelled - RDAC Legislative Initiatives Meeting

Monday, August 19, 2024

10:30 a.m. - 11:30 a.m.
RDAC Steering Committee Meeting

Thursday, August 15, 2024

10:30 a.m. - 11:30 a.m.
RDAC - Newborn Screening Ad Hoc meeting agenda

Friday, August 9, 2024

9 a.m. - 11 a.m.
RDAC Full Council Meeting

Thursday, July 18, 2024

9 a.m. - 11 a.m.
Legislative Initiatives Subcommittee Meeting

Monday, July 15, 2024

11 a.m. - 12 p.m.
RDAC Steering Committee Meeting

Thursday, June 20, 2024

10:30 a.m. - 11:30 a.m.
Legislative Initiatives Subcommittee Meeting

Monday, June 3, 2024

11 a.m. - 12 p.m.
Legislative Initiatives Subcommittee Meeting Agenda

Monday, May 20, 2024

11 a.m. - 12 p.m.
RDAC Full Council Meeting

Thursday, May 16, 2024

9 a.m. - 11 a.m.
RDAC Community Engagement Workgroup - Subcommittee Meeting

Wednesday, May 15, 2024

11 a.m. - 12 p.m.
RDAC Community Engagement Workgroup Subcommittee Meeting

Monday, May 6, 2024

1 p.m. - 2 p.m.
RDAC Legislative Initiatives Subcommittee Meeting

Monday, May 6, 2024

11 a.m. - 12 p.m.
RDAC Legislative Initiatives Subcommittee Meeting

Monday, April 22, 2024

11 a.m. - 12 p.m.
RDAC Steering Committee Meeting Agenda

Thursday, April 11, 2024

10:30 a.m. - 11:30 a.m.
Rare Disease Advisory Council (RDAC) Meeting

Thursday, March 28, 2024

9 a.m. - 11 a.m.
Canceled: RDAC Steering Committee Meeting Agenda

Monday, February 19, 2024

10:30 a.m. - 11:30 p.m.
RDAC Community Engagement Workgroup Subcommittee Meeting

Monday, February 5, 2024

10:30 a.m. - 11 a.m.
Rare Disease Advisory Council (RDAC) Meeting

Thursday, January 18, 2024

9 a.m. - 11 a.m.
RDAC Steering Committee Meeting Agenda

Tuesday, December 19, 2023

11 a.m. - 12 p.m.
Workgroup 2 and Workgroup 3 Joint Subcommittee Meeting

Friday, December 1, 2023

12 p.m. - 1 p.m.
Rare Disease Advisory Council (RDAC) Meeting

Thursday, November 16, 2023

9 a.m. - 11 a.m.
RDAC Virtual Town Hall

Saturday, October 28, 2023

10 a.m. - 11:30 a.m.
Rare Disease Advisory Council Steering Committee Meeting

Thursday, October 19, 2023

10:30 a.m. - 11:30 a.m.
Rare Disease Advisory Council (RDAC) Meeting

Thursday, September 21, 2023

9 a.m. - 11 a.m.
Rare Disease Advisory Council (RDAC) Steering Committee

Thursday, August 17, 2023

2 p.m. - 3 p.m.
Workgroup 1 Subcommittee Meeting

Monday, August 7, 2023

2 p.m. - 2:55 p.m.
Workgroup 2 and Workgroup 3 Joint Subcommittee Meeting

Monday, August 7, 2023

10 a.m. - 11 a.m.
Rare Disease Advisory Council (RDAC) Meeting

Thursday, July 20, 2023

9 a.m. - 11 a.m.
Workgroup 2 Subcommittee Meeting

Wednesday, June 14, 2023

11 a.m. - 12 p.m.
Rare Disease Advisory Council (RDAC) Steering Committee

Thursday, June 8, 2023

10:30 a.m. - 11:30 a.m.
Workgroup 1 Subcommittee Meeting

Monday, June 5, 2023

2:05 p.m. - 2:55 p.m.
Workgroup 3 Subcommittee Meeting

Monday, June 5, 2023

10 a.m. - 11 a.m.
Rare Disease Advisory Council (RDAC) Meeting

Thursday, May 18, 2023

9 a.m. - 11 a.m.
Rare Disease Advisory Council (RDAC) Steering Committee

Thursday, April 27, 2023

10:30 a.m. - 11:30 a.m.
Workgroup 2 Subcommittee Meeting

Wednesday, April 12, 2023

11 a.m. - 12 p.m.
Workgroup 1 Subcommittee Meeting

Monday, April 3, 2023

2 p.m. - 2:55 p.m.
Workgroup 3 Subcommittee Meeting

Monday, April 3, 2023

10 a.m. - 11 a.m.
Rare Disease Advisory Council (RDAC) Meeting

Thursday, March 16, 2023

9 a.m. - 11 a.m.
Rare Disease Advisory Council (RDAC) Steering Committee Meeting

Thursday, February 16, 2023

10:45 a.m. - 11:45 a.m.
Rare Disease Advisory Council (RDAC) Workgroup 3 Subcommittee Meeting

Monday, February 13, 2023

10 a.m. - 11 a.m.
Rare Disease Advisory Council (RDAC) Workgroup 1 Subcommittee Meeting

Wednesday, February 8, 2023

3 p.m. - 4 p.m.
Rare Disease Advisory Council (RDAC) Workgroup 2 Subcommittee Meeting

Wednesday, February 8, 2023

11 a.m. - 12 p.m.
Rare Disease Advisory Council (RDAC) Meeting

Thursday, January 19, 2023

9 a.m. - 11 a.m.
Rare Disease Advisory Council (RDAC) Steering Committee

Thursday, December 15, 2022

10:30 a.m. - 11:30 a.m.
Rare Disease Advisory Council (RDAC) Meeting

Thursday, November 17, 2022

9 a.m. - 11 a.m.
Rare Disease Advisory Council (RDAC) Steering Committee

Thursday, November 3, 2022

4 p.m. - 5 p.m.
Rare Disease Advisory Council (RDAC) Steering Committee

Thursday, October 20, 2022

10 a.m. - 11 a.m.
Rare Disease Advisory Council (RDAC) Meeting

Thursday, September 15, 2022

9 a.m. - 11 a.m.
Rare Disease Advisory Council (RDAC) Steering Committee

Thursday, August 25, 2022

10 a.m. - 11 a.m.
Rare Disease Advisory Council (RDAC) Meeting

Thursday, July 28, 2022

9 a.m. - 11 a.m.
Rare Disease Advisory Council (RDAC) Steering Committee

Thursday, July 14, 2022

10 a.m. - 11 a.m.
Rare Disease Advisory Council meeting

Thursday, June 23, 2022

9 a.m. - 11 a.m.

Remote
Rare Disease Advisory Council (RDAC) Steering Committee meeting

Friday, May 27, 2022

1:30 p.m. - 2:30 p.m.

Remote
Rare Disease Advisory Council meeting

Thursday, March 31, 2022

9 a.m. - 11 a.m.

Remote
Rare Disease Advisory Council meeting

Thursday, December 9, 2021

9 a.m. - 11 a.m.

Remote
Rare Disease Advisory Council Meeting

Thursday, September 16, 2021

9 a.m. - 11 a.m.